About CF
What Is Cystic Fibrosis?
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:
* clogs the lungs and leads to life-threatening lung infections;
* obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
What are the symptoms of cystic fibrosis?
People with CF can have a variety of symptoms, including:
* very salty-tasting skin;
* persistent coughing, at times with phlegm;
* frequent lung infections;
* wheezing or shortness of breath;
* poor growth/weight gain in spite of a good appetite; and
* frequent greasy, bulky stools or difficulty in bowel movements.
What are some statistics of CF?
• About 1,000 new cases of cystic fibrosis are diagnosed each year.
• More than 70% of patients are diagnosed by age two.
• More than 45% of the CF patient population is age 18 or older.
• The predicted median age of survival for a person with CF is more than 40 years
Is there a cure for cystic fibrosis?
Currently, there is no cure for cystic fibrosis. However, specialized medical care, aggressive drug treatments and therapies, along with proper CF nutrition, can lengthen and improve the quality of life for those with CF.
The best way for people with cystic fibrosis to fight their disease is to work with their medical caregivers at a CF Foundation-accredited care center. The care center partners with people who have CF to help keep them in the best health possible.
